The following is from an MAA parent who is sharing with us a little bit about the reality of raising a child with special needs. She is sharing so that others who are considering adopting a child with special needs such as many of the waiting children in China might get some of their questions answered. Please know MAA wants parents to be informed, and we are so happy to connect you to other resources (including experienced adoptive parents) that can help answer real life questions!
I have adopted 6 children with special needs., Three of our children have Hepatitis B., This has to be one of the easiest special needs out there., My children have to have their blood drawn once a year, and have a MRI of their livers., They see the pediatric gastrinologist once a year., I often forget all about their need until one gets a cut., Then it all comes back to me., I know I need to take extra precautions on cleaning up any surfaces they may have bled on., My husband and I and all our children have been vaccinated against this virus., It is a very manageable need.
We have a daughter with cleft lip/cleft palate., This is one of the more involved needs out there., I often hear of people saying it is a minor need and I have to disagree., Cleft lip/cleft palate or otherwise known as cl/cp can have other complications involved such as hearing, heart, etc., We are very blessed in that my daughter does not have any of these other needs., There are many surgeries that are involved in repairing a cl/cp child., It is not a ,,¦…œone surgery and it is done,,‚ type of need., My daughter is 8 years old and has already had 3 surgeries, and is getting ready to have her fourth surgery in a few weeks., I was told by her doctors they will do her final surgery at the age of 18 or 19., Having said that, we are so blessed in having her in our family., She is a true inspiration in the way she handles all of her surgeries and speech issues.
, We have a son with multiple needs., He was listed as ,,¦…œmild mental delay.,,‚, He is much more than that., , It didn,,…¾‚t take long for his doctors to diagnose our son with fetal alcohol syndrome and microcephaly., He also has vision issues, hearing issues, mild cerebral palsy, etc,,‚¦, He is such a joy in our life., He has to go to the eye dr every 4 months for his eye problems, but other than that he is pretty easy., Our son will always be dependent on us, and sometimes the magnitude of his delays hit us in the face., But the unconditional love he shows is amazing., I have learned so much from the continuous joy he has in life and family., My son is happy, smiley, and laughing 90% of the time., He bounces back from his disappointments very quickly.
, We have a daughter with left side hemiplegia and leg length difference., She has only been home for 5 months so we are still in the throes of her medical assessments., Our daughter is truly amazing in her ability., She only has one good hand, but she dresses herself every day., She runs and is getting more stable, even though she walks on her tip toes on one foot., Our daughter will receive a botox shot next week and 3 weeks of casting to help make her foot flat., She will be wearing an AFO on her affected foot afterward., I was told she will be seeing the pediatric orthopedist every 6-9 months following this procedure.